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Diabetes Is My Life
  • About Tanja
    • My diabetes story
    • Contact
  • Diabetes
    • Diabetes Facts
  • Diabetes treatment
    • CGMs, Meters & Pumps
    • Insulin
    • Diabetes management
    • Diabetes tips
  • Diabetes stories from other people
  • Diabetes cookbook
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Diabetes stories from other people

Diabetes stories from other people

Барање од Сојуз на здруженија на пациенти со дијабетес на Македонија (СЗДМ)

by tanja August 19, 2020

Почитувани,

Како наши партнери во грижата на пациентите со дијабетес Ви се обраќаме со молба да ги разгледате нашите барања / предлози кои се во насока за подобрување на медицинската грижа на нашите пациенти, односно на пациентите со дијабетес мелитус, сeкако имајќи ја во предвид новата реалност предизвикана со вирусот COVID 19 и тоа:

–         Усвојување  на  национален  план за превенција од дијабетес 2020 – 2030.

–         Изработка на национален регистер за лица со дијабетес 

Водејќи се од потребата за добра евиденција и увид во моменталната ситуација, потребно е државата да го креира овој национален регистар со точна бројка на лицата со дијабетес, по тип на дијабетес, возраст, пол, место на живеење и сл. Транспарентно достапниот регистер ќе биде сериозен темел за да се изработи националната стратегија за справување со дијабетесот. Изработката на оваа национална стратегија сметаме дека треба да биде доделена на стручната јавност и во креирањето на истата да бидеме вклучени и ние како национален сојуз.

–         Организирање на едукативни кампови за децаи адолесценти со  дијабетес

Едукацијата за дијабетес да се стави на врвот на приоритетно дејствување на сите чинители за превенција и справување со дијабетесот, предводени од националната комисија за дијабетес и министерството за здравство. Со организацијата на овие едукативни кампови кај овие две групи на пациенти, кои се посебно осетлива категорија на пациенти, сметаме дека на истите ќе им помогнеме за полесно да ја прифатат својата здравствена состојба и со тоа да им помогнеме да постигнат добра контрола на дијабетесот, како и да научат како да постигнат сигурна лична заштита од COVID 19.

–         Набавка на најсовремени достапни терапии

Водејќи се од идејата нашите пациенти да добиваат современа терапија за третман на нивниот дијабетес, очекуваме дека како Министерство за здравство ќе успеете истата да ни ја обезбедите. Во овој дел нашите очекувања се однесуваат за набавка на современата инсулиска терапија, GLP-1 агонисти како и друга таблетарна терапија. Во реализацијата на престојниот тендер нашите очекувања се дека, согласно законот за лекови, сите законски барања во делот на квалитет ќе бидат запазени. 

–          Набавка на сензори за континуирано мониторирање на гликемиите, глукометри, ленти, ланцети и инсулински игли

Сензорите за континуирно мониторирање на гликемиите се медицинско помагало со кое во огромна мерка од една страна се унапредува гликемиската контрола, а од друга страна се подобрува квалитетот на живот на децата со дијабетес тип 1 и нивните фамилии. Очекуваме набавка на количини кои ќе бидат доволни за сите деца со дијабетес тип 1 на возраст до 18 години. За нивната набавка сметаме дека треба да се обезбеди буџет кој ќе биде независен и одвоен од буџетот за набавака на инсулин и друга антидијабетична терапија.

Набавката на глукометри за мерење на гликемија, ленти, ланцети и игли за пациентите со дијабетес тип 1 и тип 2 согласно највисоките светски стандарди за глукометри и протоколи за контроли на гликемијата, задржувајќи го принципот на предност за квалитет наместо најниска цена. Предлагаме да се реализира по принципот на референтна цена, односно истите да се вклучат на позитивната листа или да се издаваат по принципот на издавање на ортопедските помагала. Сметаме дека треба да се дефинира најниска референтна цена која ќе биде покриена од страна на ФЗО а разликата од таа цена до цената на друго избрано помагало да биде надоместена од страна на самите пациенти. Исто така, очекуваме дека ќе продолжи како и досега, набавката на игли за аплицирање на инсулин од 4мм и 6мм. На ваков начин од една страна државата ќе продолжи да обезбедува загарантирани глукометри, ленти, ланцети и инсулински игли, како и до сега, а од друга страна самите пациенти ќе имаат право на избор ако сметаат дека истиот е неопходен.

–       Унапредување на грижата за пациентите со дијабетес COVID 19      

 Сметаме дека Министерството за здравство, со значително повисоко ниво ќе ги унапреди квалитетот на услуги за прегледи кај специјалисти: дијабетолози, ендокринолози, офтамотолози, кардиологија, неврологија и нефролози, за навремено откривање на можни комбордитети. Предлагаме измена за системско решение за континуирана достапност на стручна психолошка поддршка на нашите пациенти. Сите интернисти кои имаат право да пропишуваат инсулинска терапија сметаме дека треба да имаат право да ја пропишуваат и новата современена терапија, за разлика од сегашното решение согласно кое само одреден број на интернисти (центри за дијабетес во рамки на општи и клинички болници), имаа привилегија да лечат со современа терапија. Сметаме дека неопходно е рестартирање на центри за дијабетес, во здравствените установи каде постоеле, во некои од регионите и како регионални центри за дијабетес.

Особено важно, за здравјето па и животот на лицата со дијабетес, е итно да се вратат сите специјалистички и субспецијалистички прегледи за лицата со дијабетес покрај шестмесечните, да се овозможат интеревенциите на лицат со дијабетес кои имаат комбордитети како шти се неврологија, офтамотолигија – особено за спас на видот.

На крај дозволете да Ви се заблагодариме за нашата досегашна успешна соработка и да изразиме надеж дека овие наши конструктивни барања / сугестии ќе бидат разгледани и усвоени од Ваша страна, согласно можностите.

Само со обострано меѓусебно почитувања и препознавање на моменталните потреби ќе бидеме во можност да ја унапредуваме оваа соработка, со цел да создадеме услови за подобра грижа на нашите пациенти, подобри гликемии, помалку компликаци и многу позадоволни пациенти, а со тоа и позадоволни семејства.

Со почит,

                                                                                    Сојуз на здруженија на дијабетичари на Македонија

Претседател,

Димче Велев

August 19, 2020 0 comment
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On January 11th 1922, Insulin Was First Used To Treat Diabetes
Diabetes stories from other people

On January 11th 1922, Insulin Was First Used To Treat Diabetes

by tanja January 12, 2020

January 11th 1922 is a very important day in the history of diabetes. On this day, the insulin was first used in the treatment of diabetes.

On January 11th 1922

January 11th 1922 is the day when the lives of people with diabetes changed

A fourteen-year-old Leonard Thompson, who had diabetes, was dying at the Toronto General Hospital. The doctors gave him the first injection of insulin – a pancreatic extract prepared by Dr. Frederick Banting, and medical student, Charles Best. However, the extract was so impure that Thompson suffered a severe allergic reaction.

Over the next 12 days, James Collip worked day and night to improve the ox-pancreas extract. On the 23rd of January, they injected him a second dose of insulin. Luckily, this was completely successful. The boy’s blood sugar levels dropped to normal levels. Thompson would live another 13 years with daily injections of insulin, before dying of tuberculosis.

A dramatic moment

Doctors kept the children dying from diabetic ketoacidosis (DKA) in large wards, often with 50 or more patients in a ward, mostly comatose. Grieving family members were often in attendance, awaiting the (until then, inevitable) death. In one of medicine’s more dramatic moments Banting, Best, and Collip went from bed to bed, injecting an entire ward with the new purified extract. Before they had reached the last dying child, the first few were awakening from their coma, to the joyous exclamations of their families. Although it was not a cure, it was a monumental breakthrough in treatment for diabetes.

Published paper in the Canadian Medical Association Journal

In March 1922, the Canadian Medical Association Journal published a paper in which described the case of Leonard Thompson, and six other patients the Banting and Best team treated with the refined extract. Additionally, this was the first official announcement of an extract developed to alleviate the symptoms of diabetes.

“A message of hope to sufferers from diabetes goes out authentically today from the medical research laboratories of the University of Toronto. The modesty of medical men and scientific investigators of the genuine brand attempts to minimize the results obtained. The harm of exaggeration and the injustice to both parents and research men in awakening false and premature hopes before the extracts can possibly be manufactured cannot be over-emphasized. But the fact remains that one of the most important discoveries in modern medical research has been made at the university here. It is not a cure for diabetes, its authors state. Within six months, however, their discovery will be used on a large scale, they hope, to prolong life quite considerably at least. There will be no secrecy, as from the beginning. The medical profession will know all the facts.”

— The Toronto Daily Star – March 22, 1922 Edition


January 12, 2020 0 comment
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This is Mihaela's life with type 1 diabetes.
Diabetes stories from other people

Mihaela’s Life With Type 1 Diabetes

by tanja September 6, 2018

When I started writing my blog, I have never thought that I would become a motivation for many people. But that’s what happened. One day Mihaela Anastasovska, a lovely girl, wrote to me. She has been leaving with type 1 diabetes for a year. She confessed to me that my blog helped me to accept herself and her life with diabetes. Now she is ready to share her life with type 1 diabetes. Furthermore, she is ready to help many other people to accept their life with diabetes.

Mihaela's life with type 1 diabetes

Her life with type 1 diabetes

“I was only 16 when I discovered that I had diabetes. Yes, like every person, so I asked the question “Why me?”. In the first few months, I thought of diabetes as a punishment. However, now after a year and a half, I am happy to have diabetes. When I say I’m happy, I think on the positive side that diabetes gives me.

The moment when she accepted her life with diabetes

First of all, I am grateful that I learned to put myself in the first place. Moreover, now I know that I have to care for my health, to eat healthy food and to play sports. I realized that what you put through your mouth, you should expect from the body. When they took me to the hospital, my blood sugar level was 31.3 mmol / l. At first, I said, “I will not eat sweets, donuts and my blood sugar will return to normal as it was before”. But it does not. Yes, it returned to normal, injecting insulin 4 times day and eat healthy food. Look, I was a big addict on the sweets, but the desire to see a good result automatically drives you to eat healthily. Every morning, as you have to wash your teeth and face, I also need to measure my blood sugar level.

Living a life with type 1 diabetes

But one thing is most important – diabetes should not be seen as a disease, because for whatever happens, there is a reason, either sooner or later, we will see the same reason.”

September 6, 2018 0 comment
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Louise's diabetes story didn't stop her to study to become a doctor.
Diabetes stories from other people

Diabetes Didn’t Stop Louise To Study To Become A Doctor

by tanja August 29, 2018

Being diagnosed with type 1 diabetes is not easy at all. For some people is difficult to accept that condition. But, for others, it’s a motivation and inspirations for them to become doctors. One of them is Louise Peirsman, a 20-year-old girl from Belgium. I met her during the IDF Youth Leadership Camp in Prague. She was diagnosed with type 1 diabetes when she was only 14 months old. Her story touched my heart and I hope that it will touch yours as well. Her diabetes story didn’t stop her to study to become a doctor.

Diabetes didn't stop Louise to study to become a doctor.

Louise’s story

“I was 14 months old when I was diagnosed with diabetes mellitus type 1. As a result, I could not sit right, I could not walk like a normal baby from that age. I drank so much (water 😉 ). My mother thought she would lose me. When I was finally diagnosed, she couldn’t be a happier person. So you can definitely say, I grew up with diabetes and it is a part of who I am.

But I had difficulties accepting that part. When I was young I said to my mother that she needed to take care of me. Luckily, she was always there for me and she understood it. I was completely dependent on her. Unfortunately, I was ashamed to show people I had diabetes. I saw myself as someone with a disease, some kind of a handicap.

Louise and her mother.

Her diabetes story during her high school years

When I went to High School, I only told my closest friend I had diabetes. Everyone else had to find it out indirectly. Someone saw me injecting or pricking and they told it to other people. I didn’t even tell my teachers. I was afraid, when they found out, that they didn’t want to be my friend anymore. When some of them found out about my diabetes, they kind of didn’t care, but they weren’t so supportive. I had to inject myself in the toilet so they wouldn’t see it. And that didn’t help much about my shame. So I tried to hide it in any way I could.

How did diabetes motivate Louise to become a doctor?

But then I said High School and that shitty life goodbye. I started Medicine at the University of Ghent. I wanted to study to become a doctor. However, I couldn’t accept myself for who I was, that wasn’t right. So I started to accept myself for who I am. (I had also issues with my self-image) I worked on myself during summer break. Moreover, I felt I had to do something for people with diabetes. So I could feel the support and give them support back. I feel like helping people is my goal. So I had to start with myself. An so I did. My diabetes story motivated me to study to become a doctor.

How did diabetes motivate her to become a doctor?

First, I started to believe in myself, I started to learn loving myself and to accept. I saw there were positive and negative sides of diabetes. I went to an activity organized by my diabetes association (Jong & Diabeet, Diabetes Liga), I saw that people with diabetes are perfectly normal and that there was nothing strange about them. Before that day, I have never had friends with diabetes. It felt good. So I became a committee member. An amazing adventure! Those people became good friends!

All that support made me a richer person! In University I stopped caring what other people might think of me. I now inject publicly, I am not ashamed anymore. And I should never have been ashamed of my diabetes, I realize. Thanks to my Freestyle Libre sensor, it’s much easier to tell people I have diabetes. And I see that they don’t see me as a different person from that moment. And they shouldn’t! Now, I am proud and I see myself as a person WITH diabetes, not with a disease.

Louise and her family.

Her message

We are all equal no matter what we carry with us. And I have seen that everybody needs caring people around them, people who understand what it means to have diabetes. And I want to be that person for others. I believe people with diabetes are strong. We need to take more care of ourselves, but that makes us more independent! Thanks to my diabetes, I know how to fight for my goals and it gives me the opportunity to meet so many amazing people. It gives me a goal too. I want to spread this message and unite with all my friends, so we can all say: yes, we can!”

How did diabetes motivate Louise to become a doctor?

August 29, 2018 0 comment
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The moment when my father accepted my life with diabetes.
Diabetes stories from other people

How Did My Father Accept My Life With Diabetes?

by tanja April 20, 2018

My father is the person I love the most and I can´t image my life without him.  In this post, I will share his story. My father is a person who knows how to face a problem, accepts it and does everything to find a solution to solve it. I am sure that his story will reach many parents whose children are facing this disease.

“My wife and I were familiar with diabetes. But, the fact that our 6-year-old daughter has diabetes was not easy to accept.”

20 years later, I realize that the symptoms were more than obvious. However, there was something that didn’t let me see that. I remember that she was losing weight, eating chocolates, going to the toilet every half an hour. We even argued with her, because we thought that she was doing that on purpose. Now, I realize that actually, I was blind and I didn’t want to accept the reality. There was nothing to change.

How did my father accept my life with diabetes?

The moment when my father found out that I have diabetes

After the initial shock, the doctors explained to us how to treat diabetes. But, for every parent, it is difficult to accept and reconcile this problem. During the first years, we tried various alternative methods and treatments. We hoped that we will succeed in defeating diabetes. But, the hope, the excitement and, finally, the disappointment of failure, was throwing us into despair. At the moment when we accepted her condition, she had good daily control and good results as well.

Then there was a period when the puberty had a negative effect on her blood glucose levels. Fortunately, we managed to cope with the challenges.

Next, for us, it was important her teachers and friends get familiar with her condition and learn how to help her when her blood glucose levels are down. Fortunately, her friends reacted very maturely, and responsibly, and most of them accepted that responsibility.

Finally, this situation made her mature very fast and learn how to monitor her blood glucose level on a regular basis and inject insulin by herself. “

April 20, 2018 0 comment
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My mother is the person I love the most.
Diabetes stories from other people

How Did My Mother Accept My Life With Diabetes?

by tanja March 7, 2018

In this post, I will share the story from the person I love the most. It’s time to share my mother’s story. My mother has never shown her feelings in front of me. However, hearing her story helped me realize how actually she felt. And I am sure, that most of you whose children have diabetes will definitely understand her.

The story of my mother

“The fact that my child has diabetes, for me, was a shock, disbelief, and feeling that it was just a bad dream from which I will wake up and everything will disappear. Personally, as a mother, I didn’t want to accept the new situation. It took me a while to realize that this is a reality that people have to accept and live normally with. Being educated about diabetes was the best way to help her live her childhood normally. At first, we were trying to find ways, especially me as a mother, to overcome this disease. We were giving her to drink various teas. Moreover, we were taking her on bioenergy. And even I believed that the miracle will happen during puberty and everything will disappear. But I must say that it only negatively affected all of us, especially Tanja. All the expectations ended up unsuccessfully and made us feel more desperate. The first week after we came back home from the hospital, I couldn’t make any meals for her. The fear that I will prepare food that it may increase her blood glucose level, made me feel depressed and I was throwing the meals away.

The moment when my mother accepted my life with diabetes.

Although I thought we will no longer be able to go in winter and summer holidays, the following winter we went on a holiday together and we had a great time. After that, we continue going in summer and winter vacations with our friends and relatives. In order to join her friends on excursions, at the age of 9, Tanja began monitoring her blood glucose level on a regular basis and inject insulin by herself. When she was traveling alone, we were concerned about her diabetes control but she was a responsible child which was the reason why she matured faster.

When we finally decided to stop looking for alternative solutions and continue to live our lives normally, Tanja’s blood glucose level was much better and she was happier.

Now, Tanja is a lovely girl who is on a Chrono diet, because it keeps her blood glucose level stable.

Conclusion

My advice is to accept your child’s condition and not to waste money in seeking solutions that don’t exist. When someone expects a miracle to happen, the blood glucose level increases. If the blood glucose level is higher than normal, the body is damaged. Over time, high blood glucose level can cause all the scary complications associated with diabetes. That’s why it’s better to accept the situation and help your child accept life with diabetes.”

March 7, 2018 0 comment
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About Me

A girl who has been diagnosed with type 1 diabetes for 21 years, shares her personal everyday experiences and explains how she manages her diabetes world.

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